On May 13, 2013, our daughter Bella celebrated her 5th birthday! This was an amazing milestone for Bella and for us!
She was born with Trisomy 18, a severe genetic condition that makes every day with her a gift from God. Children with Trisomy 18 have an extra chromosome, are born underweight and suffer a number of health issues that lead in most cases to a shortened life. It is true that 90 percent of babies with Trisomy 18 die at or before birth, many by abortion. Only one in 10 that survive birth see their first birthday. Despite this painful reality, Bella has enriched our lives beyond measure, and she is a happy child surrounded by the love and comfort of her family.
We hope this page offers some insight into the blessings of children like Bella, and resources for those who are seeking more information or support for Trisomy kids.
God Bless,
Rick & Karen Santorum
Worth a read:
Celebrating Bella: Our Gift from God
Newsmax: Bella Santorum Turns Four this Weekend
Time Magazine: Rick Santorum's Inconvenient Truths
Resources:
Support Organization for Trisomy
Faith and Family Foundation at Wheatland Farm